
Hello out there!
Well I was about a quarter done with my transplant; meaning I was on Day 26 of 100. I had to wear a mask in public for 100 days after my transplant. I actually got pretty used to it; not that the masks aren't extremely hot like a steam bath. It was Valentines Day and Dan came down to celebrate the holiday with me. He decided he wanted to cook for me; he made his famous chicken parm. It was delicious. I set up 2 candles and some romantic music and we had a delicious dinner. Another great page to add to our scrapbook; I will give it to him for our one year anniversary. Our relationship has gotten a little strained over the past months. It is really hard to have a long distance relationship; but our love is strong enough to get us through. He is a great support but I would not mind at all if we saw each other more than once a week. I know we are trying our best to see each other but sometimes it doesn't work out.
Since I had gotten some chemo before my transplant all my hair fell out again. This time even my eye lashes and eye brows fell out. Very strange looking, but very easy.
As the transplant continued I got the feeling that I was more and more done with cancer. This was the longest time I had gone without treatment. We would try to see what the transplant could to. It was Day 43 and my emotions were very split. Though I still had to take antirejection drugs, and wear a mask in public all I wanted to do was be normal. Normal meaning have hair, be in school with my friends, see Dan everyday.
I did however decide to go snowboarding again. My sister and I went with another friend. I had this feeling in the back of my head that if I fell, it would make my tumor grow again; really not the case but can you blame me. I had a blast. It was just like riding a bike. My sister however sprained her wrist. Maybe we should just avoid the snow for a little until our luck comes back.
It was now April. I decided to ask my parents if I could have a dog for my birthday (in June). I had seen a dog at NIH a couple times now and had fallen in love. The dog was a cavachon named Sophi. I knew this was the dog I wanted. I went to the same breeder that the dog owner had gotten Sophi from and found my little companion. He was extremenly playful and had an amazing potbelly. It was love at first sight. I decided I would name him Chemo. Some may think this is really sick but now whenever I think of chemo I will think of my dog instead of the nasty medicine.
It is interesting this life of cancer. There are many ups and many downs. The ups have a duty to outweigh the downs or else who knows what will happen. I have been dealing with this disease for a year now and have made many close friends who know exactly what I am going through. It seems that people all around me are losing the battle. This only makes me think about my turn even more. This is a dark side of this disease that they don't tell you about when you are first diagnosed. To a certain extent it may be better to not meet anyone else. But then I wouldn't be me. I will continue to provide as much positive energy to my friends as possible and will support them to the last day.
Like I said, time for an escape. I was granted a Make A Wish from an adult organization. I decided that my whole family would go to the Keys. It was one of the best vacations. We stayed at the northern most key; Key Largo. We spent a week in the keys and had many wonderful adventures.
- Rode on a glass bottom boat
- Went parasailing
- Saw amazing sunsets
- Went snorkling, I saw one fish that was turqoise with purple outlined scales, its tail was red and yellow...beautiful
- We went on an airboat tour of the everglades to see the alligators, I even held a baby alligator; cute right
- We swam with Dolphins...AMAZING. Apparently the woman said the Dolphins new I was sick because they have sonar and could see the tumors
- We drove all the way down to Key West; the water had about 6 different colors in it, so clear and beautiful
There was an artist in Key West who was making spray paint pictures. I asked him what he would draw for a cancer patient; he told me a cigarette. We laughed and then he said "something to cheer them up". He proceeded to smoke a cigarette and chug a beer and get to work on my painting. It was beautiful. My Make A Wish was perfect. Our family really needed the time together in a place away from the world of cancer. Though when you go on vacation you always have to come back. Back to the life you were trying to escape in the first place; and no matter what state you left that place in there is no telling what you will come home to.